Sunday Update: 7/2/06
Hola everyone!!! I pray that you had a great weekend. All was good here in Chapel Hill.
Josh had a good day. He did as the Lord commanded for Sundays, he rested!! He looked comfortable all day. He followed commands as usual but today he did something new - mom asked him to smile if he could hear his music and he cracked a smile to right side. We both looked at each other like, "did he just do that!". He has had more facial expressions over the past two days than he has in a long time. I don't know what he is thinking about, but it is nice to see something different. He still doesn't follow commands all the time but he is doing them a little more frequently which I really like. Today his nurse, Matt, was pinching him and asking Josh to stop him to see if he was responding to pain and Josh was looking in Matt's direction and then he raised his right arm like he was going to swat at him. I have never seen him do that as well. It was quite funny. Matt just laughed.
Physical therapy has started seeing Josh a week or so ago to help keep his joints moving. As he progresses it will get more intense to help him regain strength and fine tune his motor skills. For now, they just do exercises everyday and they have a splint they rotate on his feet to help so he doesn't develop foot drop. Foot drop means that since he isn't moving his feet or placing any weight on them they just simply could lose their tone and can make it difficult later on down the road when he tries to walk. Obviously this is not what we would want so the splints are a good thing.
They trialed Josh off of the ventilator 2 times today so far and he has done just fine which is great. They spaced the trials further apart which I believe has greatly helped Josh succeed in the trial. The doctors estimated it would take from 3 to 7 days to get him completely off the ventilator. They felt that a full 14 days of antibiotics (we are on day 7 of 14) should get rid of the pneumonia and this should help him in his breathing as well. Otherwise, nothing new. But praise God that he had no steps backwards.
Thank you for caring about my brother. We really appreciate all the love and support we have received over the past month. Please continue praying. We love you all. Have a wonderful holiday.
Josh had a good day. He did as the Lord commanded for Sundays, he rested!! He looked comfortable all day. He followed commands as usual but today he did something new - mom asked him to smile if he could hear his music and he cracked a smile to right side. We both looked at each other like, "did he just do that!". He has had more facial expressions over the past two days than he has in a long time. I don't know what he is thinking about, but it is nice to see something different. He still doesn't follow commands all the time but he is doing them a little more frequently which I really like. Today his nurse, Matt, was pinching him and asking Josh to stop him to see if he was responding to pain and Josh was looking in Matt's direction and then he raised his right arm like he was going to swat at him. I have never seen him do that as well. It was quite funny. Matt just laughed.
Physical therapy has started seeing Josh a week or so ago to help keep his joints moving. As he progresses it will get more intense to help him regain strength and fine tune his motor skills. For now, they just do exercises everyday and they have a splint they rotate on his feet to help so he doesn't develop foot drop. Foot drop means that since he isn't moving his feet or placing any weight on them they just simply could lose their tone and can make it difficult later on down the road when he tries to walk. Obviously this is not what we would want so the splints are a good thing.
They trialed Josh off of the ventilator 2 times today so far and he has done just fine which is great. They spaced the trials further apart which I believe has greatly helped Josh succeed in the trial. The doctors estimated it would take from 3 to 7 days to get him completely off the ventilator. They felt that a full 14 days of antibiotics (we are on day 7 of 14) should get rid of the pneumonia and this should help him in his breathing as well. Otherwise, nothing new. But praise God that he had no steps backwards.
Thank you for caring about my brother. We really appreciate all the love and support we have received over the past month. Please continue praying. We love you all. Have a wonderful holiday.
posted by Brandon at
10:42 PM
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